14 years post-diagnosis, and my life has never been the same. Living with endometriosis has been a journey filled with pain, uncertainty, and resilience. What started as occasional discomfort quickly escalated into a relentless battle with an “unwanted guest” that refused to leave. Endometriosis is far from silent, it’s a condition that makes its presence known in every aspect of life, from physical health to emotional well-being.
The Early Years: A Mystery Unveiled
Looking back, the signs were there long before my diagnosis. The severe cramps that left me curled up in bed, the heavy periods that seemed to drain my energy, and the constant, nagging pelvic pain that I couldn’t explain, all these symptoms were clues to a bigger problem. But like many women, I was told it was “just a bad period,” something that I would have to endure.
It wasn’t until years later, after countless doctor visits, tests, and misdiagnoses, that I finally heard the word “endometriosis.” By then, the disease had already taken a toll on my body and my spirit. The diagnosis was a mix of relief and dread, relief that I finally had an answer, and dread at the realization of what that answer meant for my future.
Living with Endometriosis: A Daily Struggle
Endometriosis is more than just painful periods. It’s a chronic, often debilitating condition that affects every aspect of life. For me, it’s meant living with pain that doesn’t just come and go with my cycle, it’s a constant, unwelcome presence. It’s the fatigue that sets in after a flare-up, making even the simplest tasks feel overwhelming. It’s the anxiety that accompanies every new symptom, wondering if it’s a sign that the disease is progressing.
But perhaps one of the hardest parts of living with endometriosis is the unpredictability. Some days, I feel almost normal, able to go about my routine with only a dull ache to remind me of my condition. Other days, the pain is so intense that it’s all I can do to get through the day. This unpredictability makes it difficult to plan anything, from work commitments to social outings, because I never know when a flare-up will strike.
The Emotional Toll
Endometriosis doesn’t just affect the body, it takes a significant emotional toll as well. The chronic pain and fatigue can lead to feelings of isolation, frustration, and even depression. There are days when I feel like my body has betrayed me, making it difficult to stay positive. The constant doctor visits, treatments, and surgeries can be exhausting, both physically and emotionally, leading to a sense of hopelessness at times.
But despite these challenges, I’ve learned the importance of self-care and self-compassion. I’ve had to remind myself that it’s okay to rest, to say no, and to put my health first. I’ve also found strength in connecting with others who understand what I’m going through, whether it’s through support groups, online communities, or simply talking to friends and family who are willing to listen.
Advocating for Myself and Others
Over the years, I’ve had to become my own advocate, pushing for the right treatments and refusing to accept “it’s just part of being a woman” as an answer. Endometriosis is still widely misunderstood and underdiagnosed, and many women suffer in silence because they’re not taken seriously. This needs to change.
Through my experiences, I’ve become passionate about raising awareness for endometriosis. No one should have to endure years of pain and uncertainty before getting a diagnosis, and no one should have to feel alone in their struggle.
Moving Forward: Living Beyond Endometriosis
While endometriosis will always be a part of my life, I’ve come to realize that it doesn’t define me. Yes, it’s an unwanted guest, but it’s not the only thing that shapes who I am. I’m a nurse, a mom, a wife, and so much more. I have dreams, goals, and passions that extend far beyond my condition.
Living with endometriosis has taught me resilience, strength, and the importance of advocating for my health. It’s also given me a deep sense of empathy for others who are dealing with chronic illnesses. While the journey hasn’t been easy, it’s one that has shaped me in profound ways.
So, to anyone else living with this “not so silent” unwanted guest, know that you are not alone. Together, we can continue to raise our voices, support each other, and push for a world where endometriosis is better understood, diagnosed, and treated. My journey with endometriosis is far from over, but I’m determined to live my life fully, in spite of it.
If you would like to watch my endometriosis productivity tips, here’s the link below:
Scrubs and Snuggles 
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